Ehlers-Danlos syndromes (EDS) and Postural Orthostatic Tachycardia Syndrome (PoTS) can influence how a person experiences movement, energy, and comfort throughout the day. Many children and young people with these conditions may experience pain, fatigue, dizziness, or joint instability, which can make everyday activities feel unpredictable or tiring.
In this webinar, we explore how occupational therapy can help children and families understand these experiences and find practical ways to make daily life feel more balanced. We’ll look at how routines, movement, sensory regulation, and environmental adjustments can all support comfort, confidence, and participation in the things that matter most.
Together we’ll explore:
- What EDS and PoTS are and how they can affect daily life
- How the sensory and nervous systems connect to regulation, energy, and wellbeing
- Practical strategies to support comfort and reduce fatigue in everyday routines
- Ways families and professionals can work together to build understanding and support
This session is ideal for parents, carers, and anyone supporting children or young people with EDS or PoTS who would like to learn more about inclusive, strengths-based approaches that promote wellbeing and independence.
Book a Free Call with an OT
You can book a 30-minute free call with one of our Occupational Therapists to see how we may be able to help you and your family.
